What Cancer Takes: A Trans Perspective

“when I introduce myselfI want to write in pauses with the momentsthat people see me and they see mewholethe moments they pause with mein unison, solidarityof my true identity‚Ķ” – Fabian Romero, from “My Name,” Troubling the Line “you try to remember the first time you said i’m sorrywhen you should have said fuck you.Continue reading “What Cancer Takes: A Trans Perspective”

Privilege, Ableism, and Cancer Etiquette

When I finally shared the news that I have cancer, I was touched by the outpouring of love and support from friends, family, coworkers, and even strangers. Their open, generous responses gave me strength. And I have so many heroes: my sister, who really is #1; my friends who write me lovely letters; Jane, whoContinue reading “Privilege, Ableism, and Cancer Etiquette”

The Long, Long Road to an Imperfect Diagnosis

Total time between when the mediastinal mass was found and I received a “definitive” diagnosis: 130 days Procedures and scans to get there: 7 chest x-rays, 2 CTs, 2 full-body PET scans, 1 MRI, 1 FNA/bronchoscopy, 1 CT-guided core needle biopsy, 1 bronchoscopy/thoracotomy What I owe (not all procedures have been added to the billContinue reading “The Long, Long Road to an Imperfect Diagnosis”

"When did all this start?"

Medicine, I said, begins with storytelling. Patients tell stories to describe illness; doctors tell stories to understand it. – Siddhartha Mukherjee, The Emperor of all Maladies An impossible question, but each new doctor asks it. A question I’ve answered over and over again since they found the grapefruit-sized mass in my chest almost five monthsContinue reading “"When did all this start?"”